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hEDS comorbid conditions

Updated: Sep 18

About a year ago, I started my disability journey, and a lot of that was figuring out what was wrong with me through the internet when doctors didn't know or I was waiting for appointments. I scoured the internet for connections to my recent autism diagnosis and the medical complications I was experiencing. People with autism are more likely to hEDS and people with hEDS are more likely to have these things:

be neurodivergent

migraines

early disc degeneration

brain and spine issues

curvature of the spine

POTS

joint problems such as mild scoliosis, kyphosis etc

digestive issues and disorders

bladder issues

anxiety and depression

chronic pain

MCAS

dysautonomia

mitral valve prolapse, aortic root dilation, and dysrhythmia

fibromyalgia

craniocervical instability

Chiari malformation

syringomyelia

intracranial hypertension

tethered cord syndrome

dystonia

tarlov cysts

atlantoaxial instability

slipping rib syndrome

acid reflux

Irritable bowel syndrome

gut dysmotility

Raynaud's phenomenon

low blood pressure

autism

ADHD

bipolar

detached retina

vision problems

ME/CFS

heat intolerance

small fiber neuropathy

CRPS

sleep apnea

Sleep disturbances in general

osteoporosis

Sjogren's syndrome

thyroid disorders


So there it is, a very exhaustive list of hEDS comorbidities, a lot of which I either have or suspect I have, if one part of our body is struggling, other parts struggle as well. Almost like a buy one get a dozen for free.

Links to where I found the info:

 
 
 

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