being diagnosed with hEDS as a teen

Hi all! I don't usually make this kind of content on my blog but I'm thinking of trying it more because I have a lot to share. This past year has been quite the journey for me as I went from a thriving teen to a disabled one. Now I don't know the root cause of all of these issues just yet but I came on here today to talk about hEDS which is a genetic condition. Hypermobile Elhers-Danlos Syndrome is a connective tissue disorder that affects many aspects of your body. The most notable of these is the joints. I've been dealing with a lot of horrible joint pain specifically in my wrists, ankles and knees. I'm actually wearing wrist wraps right now because typing can be painful.

The way that I even found out about this condition was because of my autism diagnosis. I was diagnosed with autism in May of 2025 so recently and when I saw a list of comorbid conditions (conditions that frequently go together) I started researching them and seeing if any of them lined up for me and thats when I read about hEDS.

During this journey of being diagnosed and advocating for myself in doctors offices who didn't even know what I was talking about was hard and I searched online for people going through the same things. What I found was adults with a complicated medical history sometimes similar to mine sometimes not but what we didn't have in common was age and that's what I've really been searching for.

This was all a bit rambly and was more of an introduction into some more of the posts that I'm planning and working on but let me know if you have any questions!